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Patient Advocacy Group Lead


Slough, Berkshire, United Kingdom

Job Function:  Market Access & Pricing
Job ID:  69109

Patient Group Engagement Lead


To strengthen our Market Access & External Affairs department, based in our UK head office in Slough, we are looking for a talented individual to fill the position of: Patient Group Engagement Lead.

As the Patient Group Engagement Lead, you will work with patient associations along the whole of the medicine development continuum, from gaining patient insights into clinical trials to help improve patient outcomes to raising awareness of UCB therapy areas and medicines policy challenges, whilst supporting greater policy prioritisation within the NHS.

You will contribute by:

  • Acting as ‘point person’ for UK and Ireland PAGs, leading engagement on behalf of UCB with these groups.
  • Cultivating key advocacy relationships and partnership opportunities with PAGs with a view to improving patients’ access to potentially life transforming therapies and advancing national/local policies to support programs that improve treatment and care for patients;
  • Underpinning trust and partnership by ensuring UCB follow-up on agreed actions with PAGs.
  • Being a core member of the UCB Brand Teams, attend and participate in Brand Team meetings and planning session, taking the lead in the development of a Patient Group engagement strategy with mutually value adding projects and programmes – aligned with the neurology, immunology and bone brand plans – developed in partnership with patient groups.
  • Individually, in collaboration with the National Policy Manager, and through participation and leadership of external coalitions of patient groups, raise awareness of UCBs therapy areas to ensure they are prioritised to a greater and appropriate extent at policy level and within national NHS frameworks such that care for patients suffering neurological and immunological and bone conditions can be enhanced.
  • Leading the development and evolution of direct patient engagement activities and work with Brand Team colleagues to ensure insights and evidence generated from such activities are implemented into meaningful outputs that will drive progress against Brand Teams CSFs.
  • Developing connections with UCB Cares to ensure patient based feedback is integrated into Patient Group and direct patient related activities.
  • Ensuring internal coordination, implementation, and monitoring of all UCB (especially BII) patient advocacy group interactions.
  • Providing support and guidance to global R&D project teams when engaging with BII patient groups and help gain valuable patient involvement to help speed up the development of new treatments and therapies and improve existing ones to produce better health outcomes and likelihood of uptake.
  • Identifying opportunities to engage with PGs and patients through survey and research to gain deeper understanding of the needs of patients to develop evidence to advance change.


Interested? For this position you’ll need the following education, experience and skills:

  • Degree or equivalent
  • Previous experience of working in a similar role and/or within a Patient Group and/or in a patient facing role preferred.  
  • Project management, business planning and networking & collaboration skills
  • Knowledge and experience of the NHS
  • Knowledge and experience of working with Patient Groups preferred
  • Skills of influence and persuasion


Why you should apply

At UCB, we strive to attract passionate and outstanding talents who thrive on change and are ready to bring real value to patients. Working for us you’ll discover a place where you can grow and express your full potential. We place an emphasis on innovation, collaboration and impact. Through meaningful recognition and a motivating work atmosphere, we aim to provide an optimal experience by caring about and valuing our employees – just as we do for the patients we serve.


If you believe you are the perfect match to join us on our pioneering adventure, then we invite you to apply and tell us more about your profile and motivation.

Apply now »